This website was created by a group of people affected by Bethlem myopathy. It aims at providing information about muscular dystrophies due to mutations in Collagen genes, also called Collagenopathies.They include Bethlem myopathy and Ullrich muscular dystrophy. We imagined a place where people affected by one of these diseases or their relatives could find information, ask questions and share experiences. Here, you will find :
- Everyday life information to simplify your travels, your administrative application and help you realize your goals.
- Medical information about the recent progresses in the understanding of the mechanism of these diseases and potential treatment.
- Forums to ask your questions, discuss and share your experience with other members from all around the world.
- A community to tell us more about you and interact with the other members.
- Links to other useful and informative websites.
Feel free to register, create your profile, ask your questions on the forum or submit new articles. This site is yours !
